HOUSE DOCKET, NO. 681 FILED ON: 1/14/2015
HOUSE . . . . . . . . . . . . . . . No. 67
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The Commonwealth of Massachusetts
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PRESENTED BY:
Brian M. Ashe
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To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:
The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:
An Act relative to familial dysautonomia.
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PETITION OF:
Name: | District/Address: | Date Added: |
Brian M. Ashe | 2nd Hampden | 1/14/2015 |
James Arciero | 2nd Middlesex | 2/1/2015 |
Gailanne M. Cariddi | 1st Berkshire | 1/26/2015 |
Leah Cole | 12th Essex | 1/15/2015 |
Josh S. Cutler | 6th Plymouth | 1/22/2015 |
Sal N. DiDomenico | Middlesex and Suffolk | 1/26/2015 |
Shawn Dooley | 9th Norfolk | 1/22/2015 |
Tricia Farley-Bouvier | 3rd Berkshire | 1/21/2015 |
Sean Garballey | 23rd Middlesex | 1/23/2015 |
Anne M. Gobi | Worcester, Hampden, Hampshire and Middlesex | 1/30/2015 |
Paul R. Heroux | 2nd Bristol | 1/29/2015 |
Kay Khan | 11th Middlesex | 2/2/2015 |
Jason M. Lewis | Fifth Middlesex | 1/27/2015 |
Timothy R. Madden | Barnstable, Dukes and Nantucket | 2/2/2015 |
Joseph W. McGonagle, Jr. | 28th Middlesex | 1/29/2015 |
Paul McMurtry | 11th Norfolk | 1/26/2015 |
Michael O. Moore | Second Worcester | 1/23/2015 |
Thomas M. Petrolati | 7th Hampden | 2/4/2015 |
Denise Provost | 27th Middlesex | 1/30/2015 |
Angelo J. Puppolo, Jr. | 12th Hampden | 1/26/2015 |
Jeffrey N. Roy | 10th Norfolk | 1/28/2015 |
Benjamin Swan | 11th Hampden | 1/29/2015 |
John C. Velis | 4th Hampden | 2/4/2015 |
Chris Walsh | 6th Middlesex | 1/28/2015 |
Barbara A. L'Italien | Second Essex and Middlesex | 1/22/2015 |
Ellen Story | 3rd Hampshire | 1/23/2015 |
HOUSE DOCKET, NO. 681 FILED ON: 1/14/2015
HOUSE . . . . . . . . . . . . . . . No. 67
By Mr. Ashe of Longmeadow, a petition (accompanied by bill, House, No. 67) of Brian M. Ashe and others for legislation to provide that persons diagnosed with familial dysautonomia disorder receive certain services from the Department of Developmental Services. Children, Families and Persons with Disabilities. |
The Commonwealth of Massachusetts
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In the One Hundred and Eighty-Ninth General Court
(2015-2016)
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An Act relative to familial dysautonomia.
Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
SECTION 1. Notwithstanding chapter 19B or 123B of the General Laws, or any other general or special law to the contrary, persons diagnosed with familial dysautonomia shall be eligible for the same services and supports from the department of developmental services as persons with intellectual disabilities, as defined in section 1 of said chapter 123B and applicable rules and regulations of the department. For the purpose of providing services and supports pursuant to this act, a diagnosis with familial dysautonomia shall be conclusive evidence that the person so diagnosed qualifies as a person with an intellectual disability, as defined in said section 1 of said chapter 123B and applicable rules and regulations.
SECTION 2. The department of developmental services, in coordination with physicians at the Baystate Medical Center in Springfield and, to the extent practicable, the Laboratory for Familial Dysautonomia Research at Fordham University, Bronx, NY, shall promulgate rules and regulations necessary to carry out the provisions of this act. The commissioner of developmental services shall submit any proposed regulations to the joint committee on children, families and persons with disabilities and the house and senate committees on ways and means for review and comment at least 21 days before their adoption by the department.