Section 1.  Notwithstanding any General or Special Law to the Contrary there shall be established in the Commonwealth, a Bill of Rights for children, adults and their families with complex medical conditions and special health care needs.  

Section 2.  Every child, or any adult in the Commonwealth who is eligible for and/or under the continuous skilled nursing program, with a medically complex health condition or special health needs requiring specialized care in all settings shall be guaranteed the following:

1. Care that is:

a. high quality and is appropriate to the acuity of the patient.

b. family centered; care that is flexible and considers the clinical, mental, physical, and emotional needs of the patient and family;

c. maintains the dignity of the patient.

2. Access to:

a. a timely determination of services by the agency or entity responsible for providing such services.

b. the proper level of care as prescribed by a patient’s physician;

c. consistent delivery of care services in all settings

d. a choice of providers in all settings;

e. a provider that communicates effectively with families and other providers for continunity of care.

3. A continuous skilled nursing workforce that:

a. are part of a high quality workforce;

b. are paid a wage based on a reimbursement rate that allows the provider to compete for the median of nurses in the Commonwealth;

c. receives regular training and continuing education;

4. Accountability that includes, but not limited to: 

a. biannual rate reviews by Office of Medicaid within the Executive Office of Health and Human Services established in accordance with the provisions of Chapter 118E of the general Laws, through its home health care agency program in accordance with 130 CMR 403.

b. The Office of Medicaid within the Executive Office of Health and Human Services will make an annual report relative to the status of the continuous skilled nursing workforce in the Commonwealth to the Center for Health Information Analysis (CHIA) as established in accordance with the provisions of Chapter 12C of the General Laws. 

c. These reports will be reviewed by an advisory council of stakeholders who will make recommendations.

Section 3. The Office of Medicaid and the MassHealth program shall promulgate rules and regulations to incorporate the provisions of this Act within 90 days of passage.