SENATE DOCKET, NO. 1519        FILED ON: 1/20/2017

SENATE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1706

 

The Commonwealth of Massachusetts

_________________

PRESENTED BY:

Ryan C. Fattman

_________________

To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act creating Lysosomal Storage Disorders awareness month.

_______________

PETITION OF:

 

Name:

District/Address:

 

Ryan C. Fattman

Worcester and Norfolk

 

Richard J. Ross

Norfolk, Bristol and Middlesex

1/30/2017

John F. Keenan

Norfolk and Plymouth

1/31/2017

Paul K. Frost

7th Worcester

2/2/2017


SENATE DOCKET, NO. 1519        FILED ON: 1/20/2017

SENATE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1706

By Mr. Fattman, a petition (accompanied by bill, Senate, No. 1706) of Ryan C. Fattman, Richard J. Ross, John F. Keenan and Paul K. Frost for legislation to create lysosomal storage disorder awareness month.  State Administration and Regulatory Oversight.

 

[SIMILAR MATTER FILED IN PREVIOUS SESSION
SEE SENATE, NO. 1640 OF 2015-2016.]

 

The Commonwealth of Massachusetts

 

_______________

In the One Hundred and Ninetieth General Court
(2017-2018)

_______________

 

An Act creating Lysosomal Storage Disorders awareness month.

 

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

Chapter 6 of the General Laws is hereby amended by inserting after section 15BBBBBB, as appearing in chapter 267 of the acts of 2016, the following section:-

Section 15CCCCCC. The governor shall annually issue a proclamation setting apart the month of July as Lysosomal Storage Disorders Awareness Month, to increase awareness and understanding of the 6 diseases that can cause peripheral nervous system damage and deaths in infants and young children. Lysosomal Storage Disorders are rare inherited diseases which can be less debilitating if screened for and detected early in newborn children.