HOUSE DOCKET, NO. 548        FILED ON: 1/11/2019

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 2666

 

The Commonwealth of Massachusetts

_________________

PRESENTED BY:

Brian M. Ashe

_________________

To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act designating the last day of February as rare disease day in the Commonwealth.

_______________

PETITION OF:

 

Name:

District/Address:

Date Added:

Brian M. Ashe

2nd Hampden

1/11/2019

Josh S. Cutler

6th Plymouth

1/30/2019

Colleen M. Garry

36th Middlesex

1/11/2019

Anne M. Gobi

Worcester, Hampden, Hampshire and Middlesex

1/17/2019

Kate Hogan

3rd Middlesex

1/29/2019

Steven S. Howitt

4th Bristol

1/29/2019

Louis L. Kafka

8th Norfolk

1/15/2019

Hannah Kane

11th Worcester

1/22/2019

Patrick Joseph Kearney

4th Plymouth

1/12/2019

Eric P. Lesser

First Hampden and Hampshire

2/1/2019

David Paul Linsky

5th Middlesex

1/24/2019

Joseph D. McKenna

18th Worcester

1/29/2019

Paul McMurtry

11th Norfolk

1/30/2019

Michael O. Moore

Second Worcester

1/24/2019

Mathew J. Muratore

1st Plymouth

1/25/2019

Patrick M. O'Connor

Plymouth and Norfolk

1/30/2019

Angelo J. Puppolo, Jr.

12th Hampden

1/22/2019

John H. Rogers

12th Norfolk

1/31/2019

Michael J. Soter

8th Worcester

1/16/2019

Bud L. Williams

11th Hampden

1/30/2019


HOUSE DOCKET, NO. 548        FILED ON: 1/11/2019

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 2666

By Mr. Ashe of Longmeadow, a petition (accompanied by bill, House, No. 2666) of Brian M. Ashe and others for the annual issuance of a proclamation by the Governor designating the last day of February as rare disease day.  State Administration and Regulatory Oversight.

 

[SIMILAR MATTER FILED IN PREVIOUS SESSION
SEE HOUSE, NO. 1650 OF 2017-2018.]

 

The Commonwealth of Massachusetts

 

_______________

In the One Hundred and Ninety-First General Court
(2019-2020)

_______________

 

An Act designating the last day of February as rare disease day in the Commonwealth.

 

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

Chapter 6 of the General Laws is hereby amended by inserting after section 15OOOOO, inserted by chapter 238 of the acts of 2012, the following section:—

15PPPPP. The governor shall annually issue a proclamation setting aside the last day of February as Rare Disease Day recommending its observance by the public to increase public awareness of rare diseases which affect millions of Americans resulting in special challenges encountered by patients and their families as well as the impact upon medical professionals, researchers, educators and others who serve the rare disease community and recommending that said day be observed in an appropriate manner by the people.