SENATE DOCKET, NO. 2038        FILED ON: 1/18/2019

SENATE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1844

 

The Commonwealth of Massachusetts

_________________

PRESENTED BY:

Ryan C. Fattman

_________________

To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act creating lysosomal storage disorders awareness week.

_______________

PETITION OF:

 

Name:

District/Address:

 

Ryan C. Fattman

Worcester and Norfolk

 

Michael O. Moore

Second Worcester

2/1/2019

Michael J. Soter

8th Worcester

2/1/2019


SENATE DOCKET, NO. 2038        FILED ON: 1/18/2019

SENATE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1844

By Mr. Fattman, a petition (accompanied by bill, Senate, No. 1844) of Ryan C. Fattman, Michael O. Moore and Michael J. Soter for legislation to create lysosomal storage disorder awareness month.  State Administration and Regulatory Oversight.

 

[SIMILAR MATTER FILED IN PREVIOUS SESSION
SEE SENATE, NO. 1706 OF 2017-2018.]

 

The Commonwealth of Massachusetts

 

_______________

In the One Hundred and Ninety-First General Court
(2019-2020)

_______________

 

An Act creating lysosomal storage disorders awareness week.

 

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

Chapter 6 of the General Laws, as appearing in the 2016 Official Edition is hereby amended by inserting after section 15BBBBBB the following section:-

Section 15CCCCCC. The governor shall annually issue a proclamation setting apart the second week of July as Lysosomal Storage Disorders Awareness Week, to raise awareness of the 6 diseases that can cause peripheral nervous system damage and deaths in infants and young children and recommend that the week be observed in an appropriate manner by the people.