HOUSE DOCKET, NO. 4255        FILED ON: 4/4/2023

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 4070

 

The Commonwealth of Massachusetts

_________________

PRESENTED BY:

Kristin E. Kassner and Bruce E. Tarr

_________________

To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day.

_______________

PETITION OF:

 

Name:

District/Address:

Date Added:

Kristin E. Kassner

2nd Essex

4/4/2023

Bruce E. Tarr

First Essex and Middlesex

4/4/2023

Jillian Kavanaugh

33 Crescent Road, Hamilton, MA 01982

4/4/2023

Samantha Montaño

15th Suffolk

4/10/2023

Bud L. Williams

11th Hampden

4/14/2023

Vanna Howard

17th Middlesex

7/2/2023


HOUSE DOCKET, NO. 4255        FILED ON: 4/4/2023

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 4070

By Representative Kassner of Hamilton and Senator Tarr, a joint petition (subject to Joint Rule 12) of Kristin E. Kassner, Bruce E. Tarr and others for the issuance of an annual proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental Syndrome awareness day.  State Administration and Regulatory Oversight.

 

The Commonwealth of Massachusetts

 

_______________

In the One Hundred and Ninety-Third General Court
(2023-2024)

_______________

 

An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day.

 

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

Chapter 6 of the General Laws, as appearing in the 2020 Official Edition, is hereby amended by inserting after section 15ZZZZZZ, the following section:-

Section 15AAAAAAA. The governor shall annually issue a proclamation setting apart April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day, to raise awareness of this rare genetic disorder caused by heterozygous mutations in the CSNK2A1 gene on chromosome 20 and manifesting as developmental delay or differences in brain function, which can be managed with early therapy, and recommending that the day be observed in an appropriate manner by the people.