HOUSE DOCKET, NO. 4592        FILED ON: 9/28/2023

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 4145

The Commonwealth of Massachusetts

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PRESENTED BY:

Jessica Ann Giannino

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To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act improving pediatric cancer research.

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PETITION OF:

HOUSE DOCKET, NO. 4592        FILED ON: 9/28/2023

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 4145

The Commonwealth of Massachusetts

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In the One Hundred and Ninety-Third General Court
(2023-2024)

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An Act improving pediatric cancer research.

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

  SECTION 1. Chapter 29 of the General Laws is hereby amended by inserting after section 2AAAAAA the following section:-

Section 2BBBBBB. (a) There is hereby established and set up on the books of the commonwealth a Pediatric Cancer Research and Resource Project Trust Fund for the purpose of providing grants for pediatric cancer research projects and pediatric cancer resource projects in the commonwealth.

(b) The fund shall be credited with: (i) appropriations or other money authorized or transferred by the general court and specifically designated to be credited to the fund; (ii) funds from public and private sources, including, but not limited to gifts, grants and donations; and (iii) any interest earned on such money.

(c) Subject to appropriation, amounts credited to the fund shall be used for grants for pediatric cancer research and pediatric cancer resource projects in the commonwealth. Money remaining in the fund at the end of a fiscal year shall not revert to the General Fund.

(d) As uses in this section, the following words shall have the following meanings unless the context clearly requires otherwise:

“Pediatric cancer research project”, a scientific research project focusing on the causes, prevention, education, screening, treatment or cure of pediatric cancer, or the symptoms or effects experienced by patients following completion of a course of treatment for pediatric cancer, and may include basic, clinical and epidemiologic research.

“Pediatric cancer resource project”, a community-based educational, informational, awareness and financial resource project that improves the lives of individuals afflicted by pediatric cancer through an enhanced understanding of the diagnosis, treatment and long-term impacts of childhood cancer and provides support to reduce its emotional, educational and financial burden.

SECTION 2. The executive office of health and human services shall establish a permanent advisory committee to award and allocate grants for pediatric cancer research and pediatric cancer resource projects in the commonwealth. The advisory committee’s membership shall consist of 7 members appointed by the secretary of health and human services 2 of whom shall be survivors of pediatric cancer or caregivers to individuals with pediatric cancer, 1 of whom shall be a representative of a nationwide childhood cancer advocacy non-profit and 4 of whom shall be professionals from the childhood cancer field.

Not later than August 1, the executive office of health and human services shall submit an annual report to the House and Senate Committees on Ways and Means, Joint Committee on Public Health, And Joint Committee on Healthcare Finance detailing the number, amounts and recipients of the grants awarded pursuant to section 2BBBBBB of chapter 29 of the General Laws, the resulting research and other relevant information as requested by the special committee.