HOUSE DOCKET, NO. 1173        FILED ON: 1/14/2025

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1257

 

The Commonwealth of Massachusetts

_________________

PRESENTED BY:

Paul McMurtry and Brian W. Murray

_________________

To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:

The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:

An Act relative to ensuring treatment for genetic craniofacial conditions.

_______________

PETITION OF:

 

Name:

District/Address:

Date Added:

Paul McMurtry

11th Norfolk

1/14/2025

Steven Owens

29th Middlesex

1/21/2025

David Paul Linsky

5th Middlesex

1/21/2025

Lindsay N. Sabadosa

1st Hampshire

1/22/2025

Hannah Kane

11th Worcester

1/22/2025

Joanne M. Comerford

Hampshire, Franklin and Worcester

1/22/2025

Natalie M. Blais

1st Franklin

1/23/2025

Aaron L. Saunders

7th Hampden

1/27/2025

Sean Garballey

23rd Middlesex

1/29/2025

Homar Gómez

2nd Hampshire

2/3/2025

Thomas M. Stanley

9th Middlesex

2/3/2025

Jacob R. Oliveira

Hampden, Hampshire and Worcester

2/6/2025

James B. Eldridge

Middlesex and Worcester

2/10/2025

Mindy Domb

3rd Hampshire

2/18/2025

Joseph D. McKenna

18th Worcester

2/23/2025

James C. Arena-DeRosa

8th Middlesex

3/3/2025

David Henry Argosky LeBoeuf

17th Worcester

3/4/2025

Thomas W. Moakley

Barnstable, Dukes and Nantucket

3/10/2025

Jay D. Livingstone

8th Suffolk

3/10/2025

Adam J. Scanlon

14th Bristol

6/4/2025

Marjorie C. Decker

25th Middlesex

6/30/2025

Natalie M. Higgins

4th Worcester

8/7/2025


HOUSE DOCKET, NO. 1173        FILED ON: 1/14/2025

HOUSE  .  .  .  .  .  .  .  .  .  .  .  .  .  .  .  No. 1257

By Representatives McMurtry of Dedham and Murray of Milford, a petition (accompanied by bill, House, No. 1257) of Paul McMurtry, Steven Owens and others relative to health insurance coverage for treatment for genetic craniofacial conditions.  Financial Services.

 

The Commonwealth of Massachusetts

 

_______________

In the One Hundred and Ninety-Fourth General Court
(2025-2026)

_______________

 

An Act relative to ensuring treatment for genetic craniofacial conditions.

 

Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows:
 

SECTION 1. Chapter 32A of the General Laws is hereby amended by inserting after section 17S the following section:- 

Section 17T. Any coverage offered by the commission to an active or retired employee of the commonwealth insured under the group insurance commission shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders, with the exception of coverage for cleft lip and cleft palate which is prescribed under section 17J , to improve the function of, or to approximate the normal appearance or any abnormal structures caused by congenital disease of anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section  shall not include cosmetic surgery or for dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the commission. 

SECTION 2. Chapter 118E of the General Laws is hereby amended by inserting after section 10Q the following section:- 

Section 10R. The division shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed pursuant to section 10G, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or for dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the division. 

SECTION 3. Chapter 175 of the General Laws is hereby amended by inserting after section 47UU the following section:-  

Section 47VV. Any blanket or general policy of insurance under section 110 that provides hospital expense and surgical expense insurance and which is delivered, issued or subsequently renewed by agreement between the insurer and the policyholder in or outside of the commonwealth and any employees’ health and welfare fund that provides hospital expense and surgical expense benefits and which is delivered, issued or renewed to any person or group of persons in the commonwealth  shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed under section 47BB, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer. 

SECTION 4. Chapter 176A of the General Laws is hereby amended by inserting after section 8VV, the following section:- 

Section 8WW. Any contract between a subscriber and the corporation under an individual or group hospital service plan which is delivered, issued or renewed within the commonwealth shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed pursuant to section 8EE of this section, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer. 

SECTION 5. Chapter 176B  of the General Laws is hereby amended by inserting after section 4VV the following section:- 

Section 4WW. Any subscription certificate under an individual or group medical service agreement delivered, issued or renewed within the commonwealth shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer. 

SECTION 6. Chapter 176G of the General Laws is hereby amended by inserting after section 4NN the following section:- 

Section 4OO. Any individual or group health maintenance contract shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed under section 4W of this chapter, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of ectodermal dysplasia, dentinogenesis imperfecta and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or dental or orthodontic treatment unrelated to said congenital disease or anomaly. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer. 

SECTION 7. Chapter 176I of the General Laws, as so appearing, is hereby amended by inserting after section 13 the following section:- 

Section 14 An organization entering into a preferred provider contract shall provide coverage for medically necessary functional repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed under section 12 of this chapter, to improve the function of, or to approximate the normal appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under this section shall include the necessary care and treatment of medically diagnosed congenital disease or anomaly, including, ectodermal dysplasia, dentinogenesis imperfecta, and amelogenesis imperfecta. Coverage under this section shall not include cosmetic surgery or dental or orthodontic treatment unrelated to congenital defects, developmental deformities, trauma, tumors, infections or disease. The benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer.