Budget Amendment ID: FY2013-S4-518

EHS 518

PRADER-WILLI SYNDROME STUDY

Messrs. Tarr, Donnelly and Hedlund moved that the proposed new text be amended in section 2, in item 5911-1003, by striking the words “provided, that the department shall not charge user fees for transportation or community day services;” and inserting in place thereof the following:-

“provided, that the department shall not charge user fees for transportation or community day services; provided further, that the department shall undertake a study of all persons with prader-willi syndrome who have applied for eligibility for department supports and services during fiscal year 2012 and 2013;  provided further, that said study shall report how many persons with prader-willi syndrome were found eligible for supports and services from said department and how many were found not eligible; provided further, that said study shall project the cost of serving those persons with prader-willi found not eligible for said supports and services; provided further, that said study shall assess the impact that providing appropriate services for persons with prader-willi syndrome found not eligible would have on the departments service system; provided further that said study shall examine, to the extent possible, similar impacts on the service systems of Connecticut, Virginia and New York when persons with prader-willi were found eligible in those states; and provided further, that said study shall be filed with the house and senate committees on ways and means and the joint committee on children, families and persons with disabilities by December 31, 2012.”