Budget Amendment ID: FY2014-S3-592

EHS 592

New England Connection for PKU and Allied Disorder

Mr. Kennedy moved that the proposed new text be amended in section 2, in item XXXX-XXXX, Mr. Kennedy moved that the bill be amended in section 2, by inserting after item 4120-4000 the following item:

“xxxx-xxxx For a phenylketonuria (PKU) program providing patient education and support for people diagnosed with PKU or related disorders and their families; provided, that such funds shall be expended as grants to NECPAD, a support organization for such patients and their families……………………………………………………………………………..$50,000”