Budget Amendment ID: FY2023-S4-447
Parkinson's Disease Data Collection
Messrs. O'Connor, Tarr, Cronin and Cyr moved that the proposed new text be amended in section 2, in item 4510-0100, by inserting the following words:- “provided further, that $500,000 shall be expended for the purpose of implementing sections 243 and 243A of Chapter 111 of the General Laws;”; and
in said section 2, in said item 4510-0100, by striking out the figure “$22,188,252” and inserting in place thereof the following figure:- “$22,688,252”; and
by adding the following section:-
“SECTION XX. Chapter 111 of the General Laws is hereby amended by adding the following section:-
'Section 243A. Parkinson’s Disease Data Collection
The department shall, subject to appropriation, record certain cases of Parkinson’s disease that occur in residents of the commonwealth, and such information concerning these cases as it shall deem necessary and appropriate in order to conduct epidemiologic surveys of Parkinson’s disease and to apply appropriate preventive and control measures.
The commissioner shall require the reporting of certain cases of Parkinson’s disease and the submission of such specified additional information on reported cases or control populations as he deems necessary and appropriate for the recognition, prevention, or control of said disease.
The department shall, subject to appropriation, maintain comprehensive records of all reports submitted pursuant to this section. Such reports shall be confidential in accordance with section seventy and shall be released by the department only upon written request of the patient, their guardian, executor, attorney, or other person designated in writing by said patient. Such reports and records or information contained therein, may also be released by the department to persons authorized by the commissioner to conduct research studies or to other persons, but no such studies shall identify the subjects of said reports or records.
Nothing in this section shall be construed to compel any individual to submit to medical or department examination or supervision.
The department shall make such rules and regulations as are necessary to implement the provisions of this section pursuant to chapter thirty A.'."