Budget Amendment ID: FY2027-S4-530-R1

Redraft EHS 530

Endometriosis Task Force

Ms. Kennedy, Ms. Rausch, Ms. Howard, Mr. Payano, Ms. Edwards, Messrs. Montigny and Velis and Ms. Lovely moved that the proposed new text be amended by inserting after section 36 the following section:-

“SECTION 36A.  (a) The executive office of health and human services shall establish an endometriosis task force, which shall consist of: the secretary of health and human services or a designee, who shall serve as chair; the commissioner of public health or a designee; the commissioner of insurance or a designee; the assistant secretary for MassHealth or a designee; 2 representatives from the Massachusetts Medical Society; 1 representative from the Massachusetts Association of Health Plans, Inc.; and 4 persons to be appointed by the secretary of health and human services, 1 of whom shall be an individual with a diagnosis of endometriosis, 1 of whom shall be a representative of a pharmaceutical company that manufactures a drug or device for detecting, preventing or treating endometriosis and 1 of whom shall be a representative of a research, advocacy or support organization primarily serving persons diagnosed with endometriosis.

(b) The task force shall: (i) research and summarize advances made in research on and treatment and diagnosis of endometriosis; (ii) research and summarize advances made in access to care for persons with endometriosis; (iii) research and summarize services and support available to persons with endometriosis, including the commonwealth's activities and programs with respect to endometriosis; and (iv) develop a comprehensive, strategic plan to improve health outcomes for persons with endometriosis, including recommendations to: (A) advance research on endometriosis; (B) improve public awareness and recognition of endometriosis; (C) improve health care delivery for persons with endometriosis; (D) increase early and accurate diagnosis and treatment of endometriosis; (E) systematically advance the full spectrum of biomedical research on endometriosis; and (F) summarize any progress made relative related to the diagnosis and treatment of endometriosis.

(c) The task force shall submit a report of its findings, summaries, plan and recommendations to the governor and the clerks of the senate and house of representatives and the senate and house committees on ways and means not later than December 31, 2026.”.